Helpful Videos about Spinal CSF Leaks:

Video used with permission.

Video used with permission.

foundation news

The journey of recovery continues with support from physicians and physical trainers

Posted June 8, 2020

Marie Wilson from The Daily Herald follows up with Colleen and her son Samuel as she works to recover from her spinal CSF leak. Her 3 children, including her son Samuel, have benefited from the physical and emotional support of the Naperville community. UFC gym of Naperville has been a big part of the entire family's physical and emotional recovery.

Read more here

Tyrrell Foundation provides a $25,000 Grant to the Spinal CSF Leak Foundation for Symposium and Research Initiatives

Posted on May 18, 2018

With the support of generous donors, our foundation recently provided a $25,000 grant to the Spinal CSF Leak Foundation. Your donations will support the 2nd Annual Cedars-Sinai Intracranial Hypotension Symposium this Fall and upcoming research initiatives approved through the medical advisory board. A cerebrospinal fluid leak often goes undiagnosed or misdiagnosed. Individuals like Colleen suffer from the excruciating symptoms that may include headaches, fatigue and nausea. We are grateful for the efforts of the Spinal CSF Leak Foundation as they work to improve the outcomes for patients who suffer.

Colleen’s Story Featured in the Daily Herald

Posted on February 11, 2018

Marie Wilson from the Daily Herald visited with Colleen and Jahary at their home in Naperville, IL. Her story captured what it has been like for Colleen to live with a CSF Leak.

Read and listen to her story through video recorded this past summer through the Daily Herald’s website here.

Photo credit: Bev Horne, Daily Herald
Video used with permission.