Raising awareness and supporting
research for Spinal CSF Leak sufferers

Colleen's Story

About The Tyrrell Foundation

The Tyrrell Foundation was founded in 2017 through the DuPage Foundation by the family of Colleen Tyrrell Llacsa, a mom of 3 from Naperville, IL  who had been suffering the debilitating effects of a cerebrospinal fluid (CSF) leak. The Foundation’s kickoff event in 2017 raised money to support Colleen and her family, as well as bring awareness to spinal CSF leaks. Out of the darkness and suffering, the Tyrrell Foundation was formed and decided to shine a light on this condition for all those who suffer. Today, in partnership with the DuPage Foundation, all funds raised through the Tyrrell Foundation go directly to spinal CSF leak education and research.

Our Mission is to tell Colleen's story in order to raise awareness and funding for critical research which will advance treatment options for spinal CSF leak patients.

Our Vision is to support the medical community in finding a cure for this complex, under reported and often misunderstood condition so that no one will have to suffer the devastating symptoms like Colleen experienced.

A cerebrospinal fluid (CSF) leak occurs when there is a tear or hole in the membranes surrounding the brain or spinal cord, allowing the clear fluid that surrounds and cushions those organs to escape. A spinal CSF leak can have devastating effects on people in many ways, ultimately leaving some unable to work or care for themselves & others. Our mission is to help end the suffering of people with spinal CSF leaks by raising awareness and supporting research for this rare disorder. If you’d like to help the cause, please donate through the DuPage Foundation by selecting Tyrrell Foundation in the drop down menu.

Disclaimer: As a donor-advised fund of the DuPage Foundation, our aim is to raise awareness and fund research efforts for spinal CSF leaks. We do not claim medical expertise or professional diagnosis.


Spinal CSF Leak Community